Data Sharing Networks supported by Neptune and R3: Roadmap for Access for Your Research
DBMI’s Research Informatics Office (RIO, see https://www.rio.pitt.edu/projects) is the home for the Health Research Record Research request (R3, see http://rio.pitt.edu/services and https://guesdt.com/R3_Intake.html) and several major national data sharing initiatives are a rich resource for your research. These national research initiatives include (but are not limited too):
Accrual to Clinical Trials (ACT) - https://www.actnetwork.us/national
All of Us Pennsylvania (US Precision Medicine Initiative - https://joinallofuspa.org/
The National Mesothelioma Virtual Bank (NMVB) - https://mesotissue.org/
The Human Biomolecular Atlas Program (HuBMAP) - https://hubmapconsortium.org/
PaTH Network (Patient Centered Outcomes Research Network or PCORnet) - http://www.pathnetwork.org/
The Pittsburgh Genome Resource Repository (PGRR) - https://www.pgrr.pitt.edu/pgrr
These data sharing tools are valuable tools to accelerate your research on electronic health record data, imaging and genomic data and are fueled by our research data warehouse, Neptune (see https://rio.pitt.edu/projects).
Jonathan Silverstein, DBMI’s Chief Research Informatics Officer in partnership with Shyam Visweswaran (director of the Clinical Informatics for DBMI and Center for Research Informatics – see http://www.ccri.thevislab.com/doku.php) will participate in a presentation and discussion led by Mike Becich and Nickie Cappella (DBMI Senior Project Manager) about how to access these tools for your research.